Blog Postings 15 Sep 2015 Saskatoon family awaits answer on treatment for crippling disease Three children all suffer from genetic enzyme deficiency that could lead to early death CBC News Posted: Sep 15, 2015… mcfadyena
Blog Postings, Newspaper 15 Sep 2015 FOR IMMEDIATE RELEASE – SASKATOON SIBLINGS AWAIT FUNDING FOR LIFE-SAVING TREATMENT Children Diagnosed With Ultra-Rare Condition; Treatment Already Being Funded In Ontario and Quebec (Sept. 14, 2015) The Saskatchewan Ministry of… mcfadyena
Blog Postings 14 Sep 2015 CTV NEWS Saskatoon – Province asked to fund treatment September 14, 2015 A special news report on a family from Saskatchewan battling to save the lives of their three… mcfadyena
Blog Postings 07 Sep 2015 NICE draft guidance conditionally recommends elosulfase alfa (Vimizim) for treatment of very rare life-limiting genetic disorder In further draft guidance as part of its Highly Specialised Technologies Programme, NICE has provisionally recommended Elosulfase alfa (Vimizin, BioMarin… mcfadyena
Blog Postings 11 Feb 2015 Petition – Quebec Funding for Vimizim Hi Everyone, Sorry for the delay in posting, I've been on the road non-stop meeting with patients and families, and… mcfadyena
Blog Postings 19 Nov 2014 BREAKING NEWS! TREATMENT APPROVED IN ONTARIO! TREATMENT APPROVED! ONTARIO CHILD FIRST TO RECEIVE PROVINCIAL FUNDING/REIMBURSEMENT FOR VIMIZIM! We have some very exciting news to share. A… mcfadyena
Blog Postings 11 Sep 2014 New Diagnosis in Ontario This beautiful little boy, Ayub (almost 3 years-old) was just diagnosed with MPS IVA (Morquio A Syndrome) today in Ontario.… mcfadyena
Blog Postings 16 Aug 2014 Meeting With Heather Forsyth Just a quick update... I'm in Calgary meeting with Wildrose MLA Heather Forsyth. Heather is the official opposition Health Critic,… mcfadyena
Blog Postings 14 Aug 2014 New Website Launched! It's official - we've launched! With the approval of VIMIZIM in Canada, the first enzyme replacement therapy available for Morquio… mcfadyena
