How Much for Neil?

How Much is Neil’s life worth? How much for more time with his Mom and Dad? For painting? How much, for his everything?Rare Disease treatments are expensive, yet lifesaving. Neil suffers from CLN2 (Batten Disease), and an innovative treatment has saved his life. However, only 2 of 10 patients across the country have access, and governments across Canada are increasingly denying access to lifesaving drugs like this due to their high cost.We ask – How Much, is too much, for these children?Please share this message, and tag other families who are fighting similar battles in our rare disease world. Together, we can make a difference. For more information, please visit www.mpsnewbornscreening.ca.

Posted by Project One Million on Monday, January 28, 2019