Blog Postings 11 Sep 2014 New Diagnosis in Ontario This beautiful little boy, Ayub (almost 3 years-old) was just diagnosed with MPS IVA (Morquio A Syndrome) today in Ontario.… mcfadyena
Blog Postings 16 Aug 2014 Meeting With Heather Forsyth Just a quick update... I'm in Calgary meeting with Wildrose MLA Heather Forsyth. Heather is the official opposition Health Critic,… mcfadyena
Blog Postings 14 Aug 2014 New Website Launched! It's official - we've launched! With the approval of VIMIZIM in Canada, the first enzyme replacement therapy available for Morquio… mcfadyena
