Blog Postings 11 Feb 2015 Petition – Quebec Funding for Vimizim Hi Everyone, Sorry for the delay in posting, I've been on the road non-stop meeting with patients and families, and… mcfadyena
Blog Postings 19 Nov 2014 BREAKING NEWS! TREATMENT APPROVED IN ONTARIO! TREATMENT APPROVED! ONTARIO CHILD FIRST TO RECEIVE PROVINCIAL FUNDING/REIMBURSEMENT FOR VIMIZIM! We have some very exciting news to share. A… mcfadyena
Blog Postings 11 Sep 2014 New Diagnosis in Ontario This beautiful little boy, Ayub (almost 3 years-old) was just diagnosed with MPS IVA (Morquio A Syndrome) today in Ontario.… mcfadyena
Blog Postings 16 Aug 2014 Meeting With Heather Forsyth Just a quick update... I'm in Calgary meeting with Wildrose MLA Heather Forsyth. Heather is the official opposition Health Critic,… mcfadyena
Blog Postings 14 Aug 2014 New Website Launched! It's official - we've launched! With the approval of VIMIZIM in Canada, the first enzyme replacement therapy available for Morquio… mcfadyena
Uncategorized 07 Jul 2014 Vimizim Approved HEALTH CANADA APPROVES VIMIZIM TO TREAT RARE DISEASE First Ever Treatment For Morquio A Syndrome; Advocacy Group Calls For Expedited… mcfadyena
Uncategorized 28 May 2014 Drawing Hope – Morquio A What a great project! Luke and Zane Braun, two boys from Ontario battling Morquio A Syndrome, were featured by photographer… mcfadyena
